6/13/12

2 lbs

She did it! She hit 2 lbs today! Go Emmalynn!


So Close....


Emmalynn had such a great day yesterday! She was very rested and LOVED having mommy do kangaroo care with her! Here she is waving hi last night after her cares and being weighed. She is so close to 2 lbs (like 10 grams)! Fingers crossed for tonight! Go Lil' Miss!

Photo Shoot


A perk to having one of your best friends as a photographer is having her come capture some of the tiniest and tender moments in your life! Thank you Sarah (Moments Defined Photography).







6/9/12

1 Month


I can't believe Emmalynn is 1 month old already! It seems as though time has stood still and flown by all at once. She really is doing so good and we feel very blessed. 

At 1 month old, Emmalynn is 1 lb 14 oz and 13 inches long! She smiles when mommy talks and sings to her and loves to hear daddy read books. She is getting so strong and even turned her head to the other side (which is a no no with her tubes) and pushed onto her back. She likes having her hands up by her face and being swaddled, but sometimes likes to stretch out completely. She tried milk on her lips for the first time and her eyes flew open in excitement and she smacked her lips. Her feedings are going great and she gets 18 ml of milk every 3 hours that they add a fortifier to so she gets extra calories. Her kidneys seem to have (finally) kicked into gear too! The doctors still call her 'the little one' and her nurses always say she could just fit in their pocket.

Her cute nurse decorated her room and we brought in cookies for the doctors and nurses to celebrate!



The next party on the agenda (hopefully this week) is her 2 lb party!


6/3/12

Pray For Pee!


Lil' Miss Emmalynn made it off the ventilator for 39ish hours! Yay! It was just enough time to tell the doctors she's still not ready, and they were able to find out that she was big enough for the next size tube so she won't have an air leak. She is much more comfortable and resting. 

Now we have a new challenge. She didn't pee for a few days and after a kidney specialist saw her, he told us she has acute kidney failure. The good news is, after a diuretic and blood transfusion, she peed! They also put her on a low dosage of dopamine for blood flow to the kidneys and she peed again! This morning however, she didn't pee. So now they are giving her a little cortizone to see if her lack of that hormone will help the kidneys function and another dose of a diuretic.

Who knew our worries and prayers would be about pee?! And yes...we've been praying for pee! I am so grateful for prayer and even more grateful for a worthy husband who, with the help of my uncle John, was able to give Emmalynn a priesthood blessing for the healing of the sick. I have a testimony of blessings and faith in their power. We will continue to pray for pee and that her kidneys will begin to function on their own.

Last night while Phillip read Emmalynn scriptures he read this verse that to us means a lot right now.

And I will also ease the burdens which are put upon your shoulders, that even you cannot feel them upon your backs, even while you are in bondage; and this will I do that ye may stand as witnesses for me hereafter, and that ye may know of a surety that I, the Lord God, do visit my people in their afflictions.

5/30/12

No Vent...For Now


My heart always skips a beat when I hear my phone ring and the caller ID says it's the hospital. The doctors and nurses are always quick to say Emmalynn is fine, which is a relief. Yesterday I got a call from the nurse practitioner saying she was doing great with an update since I wasn't there for rounds, but then I got another call a little while later so of course I worried. She told me Emmalynn was still doing fine but there was a large air leak with her vent so she was being extubated. An air leak happens when the esophagus has grown and the vent tube is too small so air gets around it. Last week when they extubated her it was a big decision and not only did the doctors discuss it and argue, but the respiratory therapists and the nurses did too. She was extubated and was trying really hard to hold her own for about 12 hours. The nasal cannula was too big and kept slipping out. So she was reintubated. It was a good thing though because her tube needed to be changed since it can cause bacteria. Also, it gave her throat and lungs a break because every time they suctioned her they got a tinge of blood so it was rubbing somewhere. The first time they extubated her she was 2 days old and was able to do it for 4 hours. Last week she proved she wasn't quite ready and still too small. So fast forward to yesterday. There was no discussing or choices, it just needed to be done. If they have to reintubate her she will have that air leak again because she is too small (imagine that) for the next tube size up. For now she is still doing okay and we may just make it to 24 hours! Her sats go down but she slowly brings herself up and sometimes her heart rate goes down, but it goes back up. She is a fighter and trying and I think she likes not having the vent in because she turns her head and looks around! She is so strong already!


Check out her preemie binky compared to a regular newborn one! It looks big for her mouth too! She hasn't cried, but she did sneeze a few times and it was so fun to hear her make sounds! She often smacks her lips and has put her fingers in her mouth a few times!

5/28/12

How YOU Can Help

The most common questions I get are how are you doing and how can I help? For the record, I am doing great! I feel blessed to be surrounded by so much love and support. If you know me, it's hard for me to ask for help or delegate things. I just tend to take on projects and do them myself. I forget that service is good for others and that people genuinely want to help. Well friends, I just had major surgery, a micro preemie baby, and I spend my free time with my daughter at the hospital, so get this...I am asking for help! I know it's a shock!


The NICU is in need! If you need a service project idea, or summer activity for your kids, look no further. The following ideas will not only benefit the lives of other babies and families, but will directly help our little Emmalynn and us! I encourage you to get involved as much or as little as you can.


IDEA #1:
Blankets! The NICU is always in need blankets. They not only swaddle babies, but they cover their isolates to keep them dark, and line their bedding with them. You can purchase blankets, make them, or donate ones in good condition. You can even just donate fabric! The only fabric not accepted is fleece. They LOVE flannel as it is so soft on the babies skin, however, the blankets that go on top of the isolates are usually 100% cotton. Lets talk sizes. They need all sorts of sizes. Receiving blankets are the most common size which are roughly a yard (36 x 36). They like a few smaller ones too so they can swaddle the micro preemies, about 16 x 16. The ones on top of the isolate vary. We have seen rag quilts and tied quilts, which are usually 4ft x 4ft. There really are no rules as the NICU is just so grateful for the donations. If you do want Emmalynn to have a specific one that only she will use that's okay, you just need to let us know and it will only go in her drawers and laundry.


IDEA #2:
NICU approved smocks!


These really are so simple! The pattern is found HERE. These are great because preemie clothes are very expensive and don't always allow the doctors and nurses quick access to the babies. They prefer flannel and if you are serious about making some but need fabric, just contact me.

IDEA #3:
Hats!


These crazy adorable hats were made by my talented friend Valerie for Emmalynn and her NICU friends. If you know how to crochet, you can find micro preemie patterns HERE, but of course they need other sizes too as some babies in the NICU are full term.


Emmalynn is so tiny that the hats don't fit her yet, but we did find a size that would work for her. Can you believe that this hat is made from a pair of socks?! Too cute right?! HERE is the tutorial.

As with the other projects, if making these items is too hard or you don't have time, you can always buy them and donate them.

IDEA# 4:
Parent Packages! This idea was submitted by the nurses and we quickly realized why. When you have a preemie and you helplessly sit by your child's bedside, it really is more for your peace of mind. The nurses and monitors do the work at this point for these precious little ones. Parents need things to do to pass the time. Here is a list of items that we are including in the packages. You can donate these items, or just donate money for us to purchase the items.

pen
notebook (for journaling the events)
game/puzzle book (word/sudoku)
hard candies
gum
kleenex

IDEA #5:
Books/toys/puzzles/games! They have a cute little family center where we can step away for a break or during a procedure. The family center needs a few more items to keep little ones busy.


As many of you know, Phillip reads a story to Emmalynn each night. This is such a good thing for these preemies because they know mommy and daddy's voices. We always bring in our own books, but this is why it would be nice to have a better collection in the family room so other parents can read to their babies.

IDEA #6:
Mommy Smell Squares! It is so important for these little ones to know their mother's smell, especially when some of these babies aren't held for weeks. The mommy smell squares are worn by the mom, then placed on the babies head or next to their face.

This idea only takes scrap fabric! They accept all different sizes, the most common being 5x5 and 4x8. That being said, they really aren't measured and anything would work. They ask that you either zig zag stitch of surge around the edges to keep the squares from fraying. These can be 100% cotton or flannel.

IDEA #7:
Scrapbook supplies!



When a baby gets admitted to the NICU they are made a cute name banner and a scrapbook page.



On certain holidays, cute little cards are made for the parents and families.

All these items are made by the nurses and staff. They could use not only donated scrapbook items to create these things, but they would also love pre-made items.


If you want to and/or are able to help with any of these ideas, feel free to email me with questions about how and where to donate items. Fabric items need to be washed in a special detergent, which I have, so again just contact me. Thank you for everyones love and support. We are hopeful that others will help us pay it forward to the amazing NICU that is taking care of our little one.

5/27/12

Eat and Grow



I love it when they tell me Emmalynn has no tests or poking/prodding for the day and her only job is to eat and grow. This morning when we went to see her before church she had gotten a bath, had her bedding changed, was swaddled for the first time, and had a sassy hot pink bow in her hair. This picture helps you get an idea of how little she is compared to Phil's hand comforting her.

5/26/12

Playing Dress Up Already


We played dress up for just a minute with Emmalynn last night since she was awake and alert and opened her eyes a ton while we talked to her! 

One of my best friends from high school is crazy amazing at crocheting and she whipped up a bunch of adorable hats in a few different sizes for Emmalynn and her NICU friends. She was worried they were so tiny! I think we scared her a little in the picture because we were laughing at how big it was on her itty bitty head!


Although this picture is blurry because we can't have the flash on and it was so dark in her isolate, I had to have a picture of her first bow! She looked so sweet in her dainty light pink bow! Sorry baby girl, but this will be the first of MANY bows!



5/23/12

She's So Tiny...

Yep, my daughter is VERY tiny! Everything is too big for her!

This set of cute little stickers is actually supposed to go on a white onsie to see Emmalynn's progression each month. Obviously it is just as big as she is, haha. We will continue to do this each month and maybe by the time we get to 6 months she can actually wear it! Love my little peanut!



Here is a photo of an XS Preemie diaper and a Newborn diaper. She drowns in the XS Preemie diaper and they actually have to fold it in half!


This is her blood pressure cuff compared to the size of a pen. It goes on her leg and it kinda fits.


And although this is blurry, here are our wedding rings around her little arm.

5/21/12

Daddy

This was the moment I fell even more in love with my husband.


We always teased that he would be the dad that let his daughter do his hair and paint his nails and of course he'd have a real tea party with her! I think he secretly liked the idea of having a daddy's girl.

When I took this picture, I got teary eyed because I realized I was capturing a moment that was priceless. In this moment I saw a daddy who adores his daughter, who isn't afraid to be involved in every aspect of her critical cares, and who would do anything to protect her. I saw a daddy who was living in the moment not letting in any distractions. And guess what...I get to relive this moment every night. I know she likes him reading her a bed time story because her stats are so good, but I think he loves it even more. He is so animated and tells the stories in such a fun way. He really is the best daddy. And what's even cuter...he tucks her in too (puts her blanket over her isolate).

I love this man. I am so lucky.

5/18/12

Memorable "Firsts"

The "first" time I held my baby. I will never forget her warm little weightless body against me. She loved the kangaroo care and let me hold her for an hour and a half. I can't wait to do it again!



Daddy was so jealous, but he knew it was important for Emmalynn to know mommy's smell and we were told miracles happen when moms kangaroo care with their babies. If her body gets warm, mine will cool down, and if hers gets too cold mine will warm up. When he does get his turn I know he will just LOVE it!


The "first" time I got to feed my daughter. It may not be the normal way, but it still counts! She got 5 ml of my milk (yes I diligently pump every 2 hours for her). As you can see it goes in that syringe and then gravity pulls it down into her feeding tube that is in her mouth and goes straight to her little tummy.



Changing my daughters diaper for the "first" time. I was SO scared. She is so tiny...you have to be so careful...there's a million wires...oh and she can't be lifted too high so blood doesn't rush to her head...wait did I mention watch out for all the wires?! I did it though, and I am getting pretty good at it. Phil likes to do it right now. We'll see how he feels in a year!

5/9/12

She's Here {The Novel}

On Wednesday, May 2nd I went in for a routine doctors appointment where I mentioned to the doctor I was a little crampy and he decided to check me just to see what was going on. To his surprise my cervix was thinned and I was dilated to almost a 2. Naturally I was put on strict bed rest. Showers and bathroom breaks were it. So I spent a very relaxing day in bed thinking of all the things I would be able to accomplish over the next 3 months. 


Thursday I had another appointment that was a simple ultrasound of her heart and my doctor asked me to have them measure my cervix. So the nurse did and asked the doctor to come in to verify what she was (or wasn't in my case) seeing. He quickly checked me and then calmly said all right, you just lay still and we'll call you an ambulance. WHAT?! He informed me that my cervix was gone and that I was about 3-4 centimeters dilated with a bulging bag of water. So I called Phil to try and explain what was going on while the firefighters got me ready to go to the hospital. My mom and Phil met me there and I was immediately admitted and placed in a position called trandelenburg, where the head is down and the legs are higher, in hopes that gravity would help my bag of water not rupture. I was given trabutaline to help stop any contractions. The doctor had to do an amniocentesis to see if my uterus had an infection or if I just had an incompetent cervix. It wasn't too bad but I was scared I wouldn't be able to hold still. The results came back negative and I was whisked away to emergency surgery. I got my first spinal block, which was super weird because I felt like I was in a warm bath and I swore I was moving my feet but I wasn't. I was placed in some crazy stirrups and the bed was tilted at a 90° angle. They tried to do a cerclage, but it was unsuccessful as my bag of water prolapsed twice, so they had to undo it. After surgery they put some cuffs on my legs that helped the blood flow so I didn't get clots and I went back into the head down position. I was also put on a Magnesium drip that completely relaxed my entire body. I was also started on indomethacin to stop contractions because I was having a few after the trauma of the surgery, but I was still at a good 4 centimeters dilated.




When things quieted down and my parents left, Phil and I decided that our lil' miss needed a name. We both knew right away her name was to be Emmalynn. It was such a tender mercy (one of so many)! Her middle name was always going to be Fern after Phil's grandma, but it was an amazing feeling of peace when her name just came to us.


The next morning I felt a trickle at about 7:00 am and I just knew my bag of water had ruptured. The doctor came in and sure enough, it had. Luckily we could see through ultrasound that only a small portion had rupture and she still had plenty of fluid behind her. She was head down too, which meant I could stay pregnant as long as she'd stay in there (no coughing, sneezing, or throwing up because that's all it would take). They started antibiotics and I got 2 steroid shots for her lungs in 24 hour increments. Because Phillip gave me a blessing on Wednesday night, I asked my brother to give me a blessing. It was an amazing and powerful experience.


The waiting game really began at this time. The goal was 24 weeks...4 days away. I was determined! They consider 24 weeks viable and for some reason babies do better at that gestational age. My nurses said they'd have a party for me if I could make it to Tuesday! I learned quickly that visitors caused more contractions and I needed to stay still and calm. Our names were put in so many temples, and we couldn't believe all the people who were praying for us. I know those prayers helped me be at peace. My nurses (who were almost all LDS) always commented on the peace they felt in my room. My past nurses would come check on me each day and say yay you're still pregnant!


Saturday the youth in our ward did an 8 mile trek from our church building to the new Gilbert temple and they dedicated it in Emmalynn's name. When they were done, the rest of the ward met them at a nearby park for a bbq and the whole ward screamed into the phone "WE LOVE YOU". It boosted me up so much. Again the outpouring of love and support just amazes me!


Sunday brought even more peace as we felt the prayers and fasting of so many. Phil took a break and went to sacrament while my mom stayed with me. I always wanted one of them with me because if Emmalynn was going to come, they said it could take a matter of minutes.  I rested a lot on Sunday and was beginning to enjoy my laziness. I listened to music and cherished every little kick miss Emmalynn gave me. She was so super active! I was also taken off the magnesium drip and was finally eating a little.


Monday was a quiet and, you guessed it, another restful day. I just laid around and listened to music.


Tuesday was so exciting! I made it to 24 weeks! 




My mom brought chips and salsa to celebrate. What made it even better was my 2 favorite nurses took care of me. Dana was my day nurse, and Tammy was my night nurse. I told Phillip if Emmalynn decided to come, it needed to be when Tammy was my nurse because she was so sweet and calm. I guess I got my wish. Late in the evening Phil and I were just quietly talking when I had a HUGE contraction, and I gushed blood. I told Phil, who didn't believe me, that it was going to be her birthday. We called in Tammy who decided to put my IV back in to help calm my uterus. She also called the doctor who decided to check me. When she did she was shocked. My bag of water had resealed, but she was outside of it (?) and she was kicking her hand. Emmalynn had flipped and her feet were already coming out. So things moved very quickly after that. An ultrasound was ordered and I had to take some nasty medicine because I had eaten some crackers just before. Phil had time to call our parents before he had to suit up. 




They rushed me back to the operating room where I got to sit up for the first time in DAYS to get another spinal block. They tried to check me to see if I was dilated enough to just push her out (I was a 6), but they felt it was too dangerous to deliver her breach even though she was so tiny. So, I got sliced and diced both ways to remove her the safest way possible. Little miss Emmalynn made her debut at 12:58 am on May 9th (her great great grandma's 95th birthday - which I was excited about because she is stubborn and I want my daughter to be a fighter). She weighed 1 lb 8 oz and was 11 3/4 inches long.



Stitching me up took a little bit so I told Phil (before I was given medicine that put me out) to just be with her.



Once she was stable, Phil came to tell me about her because I started waking up more. They had me rest for a little while, then they took me up to see my little girl for the first time! Because I was in my bed they held a mirror up so I could barely see her. We took our first family picture, and then it hit me...I was a mom...he was a dad...we were FINALLY parents!!! 


We didn't see her long because I started getting sick and threw up 3 times (not fun after major surgery on the tummy). Again my amazing nurse Tammy took care of me. She even hunted down a fan somewhere in the hospital because I was so hot! We slept for a while the next morning because I didn't get back to my room until 6:00 am. When we did finally start waking up we kept reminding each other that we actually had a baby!

We know we have a long journey ahead that will probably be a roller coaster everyday, but we are in love with our little Emmalynn. She is such a miracle! We ask for continued prayers in her behalf. I am recovering just fine and promise to have lots of updates through Facebook and here on our blog.



5/3/12

Blankets


I am not going to go crazy on making blankets for this little girl, but I have been hoarding fabric for oh maybe 10+ years so I thought 2 blankets wasn't so bad. They are super simple and nothing to them, I just wanted to sew one morning and this is what I whipped up.




5/2/12

First Purchases


We made our first purchase for our little girl a few weeks ago while registering at Babies R Us. We've had a million friends swear by the SwaddleMe blankets and recommend we start using one while in the hospital. We saw this adorable pink SwaddlePod and knew it would be perfect for her at the very beginning (and easier for daddy to just zip up). We like that she won't startle herself with her arms flailing and she can't wiggle out of it. And it of course has ruffles!





The next purchase I made (Baby Fables) was important for me because I am into scrapbooking and documenting life. These are adorable stickers that you put onto a white onsie each month and take a picture to see the babies progression for the first year.






We know these are just small little purchases, and there are way bigger, more important purchases we will need to make, but we just had fun with some of the smaller things.



5/1/12

Nursing Cover


The answer is YES I have been working on projects for Lil' Miss and here is one of my favorites so far! I found THIS easy and adorable tutorial on Etsy (which was worth every penny) and who doesn't love ruffles! The hardest part was picking out the fabric! I completed this in an hour from start to finish and am so happy with how it turned out! Now I can be modest and private while still being stylish!




3/28/12

It's A........


3/19/12

BOY or GIRL?!


So, I will be 17 weeks tomorrow and on Wednesday at my appointment the doctor said he'd take a peek and see if he could tell us what baby Candland is. If you look on over to the right of this post there should be a poll to guess what our little munchkin is! For the record we will be happy with whatever we are having and no I don't have feelings one way or another. So is it going to be BLUE or PINK?!

2/29/12

Cross It Off The List...



I can cross off my list "make and send 10 cards to old friends"!


I had fun picking a few friends and hopefully surprising them with a fun little note. I should really do this more often!